As people living with Fibromyalgia, it’s so important for us to stay informed. Sadly, many doctors are not our advocates — some don’t fully acknowledge this condition, and many lack the understanding or compassion to treat those of us living with it. It’s incredibly frustrating.
I’ve always been an advocate for myself, but even so, it took years to get a diagnosis — and even longer to truly accept that I had Fibromyalgia. Part of the challenge is that symptoms vary so much from person to person, and the diagnostic criteria have changed over time and continue to evolve.
Facebook groups can be wonderful spaces to share experiences, receive validation, and find compassion from others who get it. But remember: take advice with a grain of salt. Always do your own research, and never stop medications or treatments based solely on what someone else says worked for them — what helps one person may not help another.
Be proactive, educate yourself, and decide what’s right for you. I recommend these sites for fact-checking and further research on medical topics, not just Fibromyalgia:
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Wikipedia (use cautiously, but it’s sometimes a helpful starting point)
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